Tuesday, October 28, 2008

Neurologist Appt 10-27

Daxton's neurologist appt was yesterday. The MRI came back normal! She wants to keep him on the Keppra and Clonidine and now start Risperdal. I'm very nervous about starting this but I know it's something we have to try. Daxton's behaviors are getting so bad and we can't really even go anywhere because of it. I know the Risperdal won't be a fix all kind of med but maybe it can help the true Daxton shine through. I'm just scared of the side effects. She said 1 in 1000 kids have a dystonic reaction to Risperdal. It's where the muscles contract and it can be very scarey. I hope and pray that doesn't happen to Daxton. We will start it tomorrow morning.

Sunday, October 26, 2008


Daxton had to have an MRI Wednesday Oct 22nd. I was so nervous b/c they had to start an IV and sedate him. The IV was rough. It only took 3 nurses, the doctor and me and Jordan to hold him down. My poor baby! Daxton screamed help me mommy the entire time then at the very end he said SAVE me mommy! It broke my heart. I guess he thought we weren't understanding help me so he had to think of another word to use. She had to stick him twice to get the IV. The MRI went well and took about 45min. He was starting to wake up as they were bringing him back. Within 30 min he was back to his normal self. We go to Baton Rouge to see the pediatric neurologist Monday to get the results. I'm just so glad it's over and hopefully we never have to do that again!

Daxton waking up after the MRI

He got a new toy when he woke up :)

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