we are lacking toys in this household

Today is Thursday and it's our weekly clean the playroom day. We don't clean up the playroom any other day. Toys just get randomly tossed in the playroom during the week and by Thursday the room is a nice mess. Why do we clean it Thursday sometimes friday morning in a mad rush??? Well we clean it then b/c Mrs. Michelle our speech therapist comes Friday morning. And I like it nice and tidy for her so she can teach my sweet babies to talk in a clean room and be able to find things she needs. We don't clean it again during the week because for some reason my kids just can't stand a nice and tidy room. If they see it all clean they start to empty baskets bins etc until it's back to a mess where they can find things more easily or something like that.

I think we need an intervention because as the book says we might just maybe have too many toys. Especially since these are just some of the toys from the playroom and there are still toys in their rooms and our living room...not to mention the big climber slide in our dinning room and ummm a few too many I've lost count tubs in the attic. Why do we have tubs of toys in our attic??? Oh just in case there is ever a shortage of toys we like to keep a stock pile up there. (really we try to rotate out toys every few months) Anyway as I was saying we are lacking toys in this household. If they ever make a show called Toy Hoarders Buried Alive we would NEVER be considered for that show we have a lack of toys here :)

Bucket of Love

What Love Really Means

I will love you for you
 

Not for what you have done or what you will become



I will love you for you



I will give you love



and show you what love really means



Mommy LOVES you so much sweet boy! And I will always love you for you :) Thank you for the beauty you bring into my world

Getting the garden ready

A few months back my dad brought the kids out to start getting the garden ready. In that very same spot over 23 years ago I helped my great Grandpa get the garden ready....



And now my little ones are doing the same thing. Memories were made and captured :)

Simply us

Life is full, busy, silly, hard work, crazy, fun, tiring, loud, happy, messy, but most of all beautiful :)

Holland Schmolland

Happy World Autism Awareness Day!!!!!


I wanted to share this today. I really love the Welcome to Holland by Emily Kingsley and I've posted it on my blog before but after reading Holland Schmolland by Laura Crawford  I love it so much more lol....I had to post it because my family are Citizens of Schmolland :)




If you have a special needs child, which I do, and if you troll the Internet for information, which I have done, you will come across a certain inspirational analogy. It goes like this:


Imagine that you are planning a trip to Italy. You read all the latest travel books, you consult with friends about what to pack, and you develop an elaborate itinerary for your glorious trip. The day arrives.


You board the plane and settle in with your in-flight magazine, dreaming of trattorias, gondola rides, and gelato. However when the plane lands you discover, much to your surprise, you are not in Italy -- you are in Holland. You are greatly dismayed at this abrupt and unexpected change in plans.


You rant and rave to the travel agency, but it does no good. You are stuck. After awhile, you tire of fighting and begin to look at what Holland has to offer. You notice the beautiful tulips, the kindly people in the wooden shoes, the french fries with mayonnaise, and you think, "This isn't exactly what I had planned, but it's not so bad. It's just different."


Having a child with special needs is supposed to be like this -- not any worse than having a typical child -- just different.


When I read this my son was almost 3, completely non-verbal and was hitting me over 100 times a day. While I appreciated the intention of the story, I couldn't help but think, "Are they kidding? We're not in some peaceful country dotted with windmills. We are in a country under siege -- dodging bombs, boarding overloaded helicopters, bribing officials -- all the while thinking, "What happened to our beautiful life?"


That was five years ago.


My son is now 8 and though we have come to accept that he will always have autism, we no longer feel like citizens of a battle-torn nation. With the help of countless dedicated therapists and teachers, biological interventions, and an enormously supportive family, my son has become a fun-loving, affectionate boy with many endearing qualities and skills. In the process we've created . . . well . . . our own country, with its own unique traditions and customs.


It's not a war zone, but it's still not Holland. Let's call it Schmolland. In Schmolland, it's perfectly customary to lick walls, rub cold pieces of metal across your mouth and line up all your toys end-to-end. You can show affection by giving a "pointy chin." A "pointy chin" is when you act like you are going to hug someone and just when you are really close, you jam your chin into the other person's shoulder. For the person giving the "pointy chin" this feels really good, for the receiver, not so much -- but you get used to it.


For citizens of Schmolland, it is quite normal to repeat lines from videos to express emotion. If you are sad, you can look downcast and say, "Oh, Pongo." When mad or anxious, you might shout, "Snow can't stop me!" or "Duchess, kittens, come on!" Sometimes, "And now our feature presentation" says it all.


In Schmolland, there's not a lot to do, so our citizens find amusement wherever they can. Bouncing on the couch for hours, methodically pulling feathers out of down pillows, and laughing hysterically in bed at 4:00 a.m. are all traditional Schmutch pastimes.


The hard part of living in our country is dealing with people from other countries. We try to assimilate ourselves and mimic their customs, but we aren't always successful. It's perfectly understandable that an 8 year-old from Schmolland would steal a train from a toddler at the Thomas the Tank Engine Train Table at Barnes and Noble. But this is clearly not understandable or acceptable in other countries, and so we must drag our 8 year-old out of the store kicking and screaming, all the customers looking on with stark, pitying stares. But we ignore these looks and focus on the exit sign because we are a proud people.


Where we live it is not surprising when an 8 year-old boy reaches for the fleshy part of a woman's upper torso and says, "Do we touch boodoo?" We simply say, "No, we do not touch boodoo," and go on about our business. It's a bit more startling in other countries, however, and can cause all sorts of cross-cultural misunderstandings.


And, though most foreigners can get a drop of water on their pants and still carry on, this is intolerable to certain citizens in Schmolland, who insist that the pants must come off no matter where they are and regardless of whether another pair of pants is present.


Other families who have special needs children are familiar and comforting to us, yet are still separate entities. Together we make up a federation of countries, kind of like Scandinavia. Like a person from Denmark talking to a person from Norway (or in our case, someone from Schmenmark talking to someone from Schmorway.), we share enough similarities in our language and customs to understand each other, but conversations inevitably highlight the diversity of our traditions. "My child eats paper. Yesterday he ate a whole video box." "My daughter only eats four foods, all of them white." "We finally had to lock up the VCR because my child was obsessed with the rewind button." "My son wants to blow on everyone."


There is one thing we all agree on. We are a growing population. Ten years ago, 1 in 10,000 children had autism. Today the rate is approximately 1 in 250.[edit: in 2011 the number is now recognized to be 1 in 110.]  Something is dreadfully wrong. Though the causes of the increase are still being hotly debated, a number of parents and professionals believe genetic predisposition has collided with too many environmental insults -- toxins, chemicals, antibiotics, vaccines -- to create immunological chaos in the nervous system of developing children. One medical journalist speculated these children are the proverbial "canary in the coal mine", here to alert us to the growing dangers in our environment.


While this is certainly not a view shared by all in the autism community, it feels true to me.


I hope that researchers discover the magic bullet we all so desperately crave. And I will never stop investigating new treatments and therapies that might help my son. But more and more my priorities are shifting from what "could be" to "what is." I look around this country my family has created, with all its unique customs, and it feels like home. For us, any time spent "nation building" is time well spent.


-- The End --

April=Autism Awareness

"When you open up to see and hear the unique ways children with autism express themselves, you can begin to see how accurately they respond to their environment. They are not clouded by social conditioning and conformity but rather live according to what is alive in them and what feels good or doesn’t feel good in that moment. They teach us to be present."

Daxton teaches me this all the time. BE present! Live in the moment, live for today :)

Surgery

Today Sage had his ear surgery. They removed the tubes and repaired the holes. He did really well.


Here are a few pictures I took with my phone



Coloring and reading books while we wait



Getting ready to go back to surgery....




Back from surgery. Everything went great! He was a little angry from the anesthesia for a while and his ears were hurting



We are already home and he's busy playing. Still complaining about his ears hurting but overall seems to feel good. Thank you guys for all the prayers.